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    Q&A – get to know me; what it’s like to be chronically ill!

    I get asked a lot of questions about all things chronic illness and also what it is like to be a chronically ill Mommy, so at the beginning of the year, which now feels like a very long time ago,…

    By Sam 23 March 2020

Recent Posts

  • Top Ten Flare-Up Essentials!
  • Play ideas; Entertaining a baby under 1!
  • Arthur’s Birth Story: a planned caesarean section!
  • Top Tips for coping when in self isolation.
  • Q&A – get to know me; what it’s like to be chronically ill!

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  • Chronic Illness
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  • July 2020
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  • March 2020

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My consultant asked me how I was yesterday and I h My consultant asked me how I was yesterday and I honestly didn’t know how to answer because I can’t remember a time where I had no pain or symptoms 🤷🏼‍♀️ Anyway, little update... I can’t have the faecal transplant yet because coronavirus can be passed on via poop, I didn’t know that. But now it makes sense why I can’t have the procedure yet. However, we do have a plan in place. I’m going to be on antibiotics for a further 5 weeks to keep my symptoms under control until they can do the procedure. I’m also upping my dosage of anti acids to see if that helps. Then there’s the stuff that could be wrong... for some reason my stomach hadn’t digested my food 7 hours after eating (we know this because I had a camera down my throat and it couldn’t go further because of food). This shouldn’t be happening so we need to find out why I’m not digesting my food. It could be Crohn’s at the beginning of my small bowel stopping food getting in easily or it could be other things like gastroparesis which is where my stomachs stopped doing what it’s meant to be doing. So the plan is a small bowel MRI next month and another camera down my throat into my stomach ASAP. There are also a number of different treatments I can try going forward but we aren’t sure which ones will be best until we have all of the above answers. It’s going to be a long road ahead but I am already feeling so much better than I did at the beginning of the summer. I hope you’re all doing okay, I know I’m being quieter than usual but there’s so much going on and when Arthur’s awake and with me (I’m trying to catch up with work on Tuesdays to Thursdays now) I just want to spend every second enjoying him ❤️ And on that note; I hope you all have a lovely weekend xx
Fell in love with @centerparcsuk last week! I can’t wait to get back there next year with my little family and best friends and goddaughter. Watching these pair grow up together really is the most precious thing 👫🏼❤️
You’d think I was unwell in the two pictures at You’d think I was unwell in the two pictures at the top, when in fact they were taken at routine scans. You’d think I was well in the bottom two pictures when actually I was admitted into hospital just a few days after the bottom right and days before the bottom left I found out I had c diff. Many chronic illnesses are invisible, and we become experts at keeping them that way. That’s why it’s so important to be kind and never judge a book by its cover ❤️
Good morning! We’ve had a lot of new people jo Good morning! We’ve had a lot of new people join our journey lately, therefore I thought I’d introduce myself! So here’s 10 things about me: 🤱🏼 I’m a mommy to a little miracle called Arthur, who we were told I wouldn’t be able to have due to chronic illnesses and severe complications after previous surgeries 👫🏼 I’m in a relationship with my childhood sweetheart (Arthur’s daddy) 💩 I got diagnosed with Crohn’s disease when I was 21 and have had 40cm of my bowel removed 🎓 I went on to do my masters at uni the same year I was diagnosed with Crohn’s - it was hard work but I did it 👩🏼‍💻 I’m a business psychologist and currently completing my chartership to become a chartered occupational psychologist 🚑 I also have endometriosis, arthritis, severe bile acid malabsorption, asthma, and a hiatus hernia (to name a few other things🙄) 🐱 I’m a cat mom to indi pops who likes to bring frogs home and leave them in the bathroom to scare me at night! 👯‍♀️ My Mom also has Crohn’s disease and is my role model and bestest friend 👑 I don’t have a big friendship circle but those who I do have mean the absolute world to me and have stuck by me through everything! 🦉 and here’s a random one for you, I’m terrified of the dark... But the fear didn’t come until I was 21 🤷🏼‍♀️ and I don’t know why. if my partner is away I won’t sleep without the light on... yes I’m weird and my health is rather complicated but that’s me! P.S we love to make new friends on here so always happy for people to drop me a message anytime and if you have any questions feel free to ask! 😘 (Instagram messages are always better than Facebook as for some reason I don’t always get notifications on my Facebook page)
Who can relate? 🙋🏼‍♀️🙋🏼‍♂️ Who can relate? 🙋🏼‍♀️🙋🏼‍♂️🙋🏾 #chronicillness #wednesdaymood
I may not have had my procedure STILL, but I am en I may not have had my procedure STILL, but I am enjoying quality family time. Also for anyone local I’d 100% recommend checking Hoo Farm out! It’s such a great day out, I’ve been twice in the last month. (Swipe to see my little comedian, making me laugh as always!) #familytime #hoofarm
Public service announcement; you can’t see anxie Public service announcement; you can’t see anxiety or depression. Don’t judge a book by its cover, and for goodness sake just be bloody kind 👏🏻 #mentalhealthawareness
Thanks for all the comments and messages of suppor Thanks for all the comments and messages of support yesterday. Today is a much better day and my little man is keeping me busy now he’s running everywhere 🙄😂 Plus looking on the bright side... I’d much rather be at home playing trains than in a hospital having a faecal transplant anyway 🤢💩
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Recent Posts

  • Top Ten Flare-Up Essentials!
  • Play ideas; Entertaining a baby under 1!
  • Arthur’s Birth Story: a planned caesarean section!
  • Top Tips for coping when in self isolation.
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